Since 1994, Mount Sinai has been hosting an active, patient-run support group, assisted by the expert medical staff of the Sarcoidosis Program. The group's purpose is to provide support and information to fellow sarcoidosis patients, family members, and caregivers. Regular meetings allow patients to voice their concerns, share experiences, learn about new diagnoses and therapies, and meet the multidisciplinary staff of pulmonologists, dermatologists, ophthalmologists, radiologists, and other specialists who participate in their care.
Our sarcoidosis support group seeks to:
- Remove the mystery about the disease by discussing reliable medical updates and explaining how the disease behaves
- Provide information about special services for sarcoidosis patients
- Raise public awareness about this little-known disease
- Increase interest in sarcoidosis research, leading to easier diagnosis, better treatments, and ultimately, a cure
New patients can be added to our mailing list by emailing or calling 212-241-8733 (email is preferred). There is no charge for belonging to the support group.